tag:blogger.com,1999:blog-5343428086984907297.post2425073426044255010..comments2024-03-25T00:54:04.110-05:00Comments on Sunshine and Spoons: What It's Like To Be a Kid With Ehlers Danlos SyndromeSunshine and Spoonshttp://www.blogger.com/profile/15218542467607737336noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-5343428086984907297.post-50482198523378324842018-11-08T08:03:19.546-06:002018-11-08T08:03:19.546-06:00My son had EDS but was not diagnosed until he was ...My son had EDS but was not diagnosed until he was 13 years old. Sadly, he went to Heaven at the age of 17 due to an aortic dissection. EDS is a horrible thing to live with. Ashanaberger2@gmail.comnoreply@blogger.comtag:blogger.com,1999:blog-5343428086984907297.post-51678953038474171212017-05-10T18:30:13.967-05:002017-05-10T18:30:13.967-05:00I always felt like I didn't quite fit in with ...I always felt like I didn't quite fit in with the other kids and I spent my childhood believing I was a wimp because I had so much pain. One of the things I remember most about being a kid is pain. Lots of pain. Sunshine and Spoonshttps://www.blogger.com/profile/15218542467607737336noreply@blogger.comtag:blogger.com,1999:blog-5343428086984907297.post-76227270005434261632017-05-10T18:15:34.682-05:002017-05-10T18:15:34.682-05:00So Sad. You had it as a child but didn't know ...So Sad. You had it as a child but didn't know it. How did you feel.Bluegrass Grannyhttps://www.blogger.com/profile/05901957358676031540noreply@blogger.com