Ehlers Danlos Syndrome

To learn about Ehlers Danlos Syndrome, start here:

http://www.sunshineandspoons.com/2016/08/what-is-ehlers-danlos-syndrome.htmlhttp://www.sunshineandspoons.com/2016/08/could-you-have-ehlers-danlos-syndrome.html



To see all of my posts on Ehlers Danlos Syndrome, click the button below.

http://www.sunshineandspoons.com/search/label/ehlers%20danlos%20syndrome

Silicone Ehlers Danlos Syndrome awareness bracelets can be purchased by clicking on the picture.

http://www.sunshineandspoons.com/p/ehlers-danlos-bracelets.html

4 comments:

  1. My son is 10 and was diagnosed last summer with EDS type 3. He also has MCAD and multiple variations of dysautonomia. His 2 younger brothers are suspected of having this disorder as well. I applaud your courage, optimism and honesty. This diagnosis is a never ending roller coaster that changes course moment to moment. We have decided that while my son is stablish, we are going to travel. His future is unknown but we are going to make the most of the time we have now. I started blogging about it. You can find us at www.ourtraveledroad.com
    I look forward to reading many more of your posts

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    1. Hi April! I hope you find some value on my blog for raising kids with EDS. Enjoy your travels!

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  2. Hi Hannah I love your medical planner, but I want to see more of the pages before I purchase the PDF file, any way of doing that.

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    1. Hi Suzie! I do have quite a few of the pages in this post to view: http://www.sunshineandspoons.com/2017/01/special-needs-and-chronic-illness.html Are there any specific pages you'd like to see?

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Thank you for your comment! I read and try to reply to every one :)