Ehlers Danlos Syndrome

To learn about Ehlers Danlos Syndrome, start here:

 To see all of my posts on Ehlers Danlos Syndrome, click the button below.

Silicone Ehlers Danlos Syndrome awareness bracelets can be purchased by clicking on the picture.


  1. My son is 10 and was diagnosed last summer with EDS type 3. He also has MCAD and multiple variations of dysautonomia. His 2 younger brothers are suspected of having this disorder as well. I applaud your courage, optimism and honesty. This diagnosis is a never ending roller coaster that changes course moment to moment. We have decided that while my son is stablish, we are going to travel. His future is unknown but we are going to make the most of the time we have now. I started blogging about it. You can find us at
    I look forward to reading many more of your posts

    1. Hi April! I hope you find some value on my blog for raising kids with EDS. Enjoy your travels!


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