My son is 10 and was diagnosed last summer with EDS type 3. He also has MCAD and multiple variations of dysautonomia. His 2 younger brothers are suspected of having this disorder as well. I applaud your courage, optimism and honesty. This diagnosis is a never ending roller coaster that changes course moment to moment. We have decided that while my son is stablish, we are going to travel. His future is unknown but we are going to make the most of the time we have now. I started blogging about it. You can find us at www.ourtraveledroad.com I look forward to reading many more of your posts
Hi Suzie! I do have quite a few of the pages in this post to view: http://www.sunshineandspoons.com/2017/01/special-needs-and-chronic-illness.html Are there any specific pages you'd like to see?
My son is 10 and was diagnosed last summer with EDS type 3. He also has MCAD and multiple variations of dysautonomia. His 2 younger brothers are suspected of having this disorder as well. I applaud your courage, optimism and honesty. This diagnosis is a never ending roller coaster that changes course moment to moment. We have decided that while my son is stablish, we are going to travel. His future is unknown but we are going to make the most of the time we have now. I started blogging about it. You can find us at www.ourtraveledroad.com
ReplyDeleteI look forward to reading many more of your posts
Hi April! I hope you find some value on my blog for raising kids with EDS. Enjoy your travels!
DeleteHi Hannah I love your medical planner, but I want to see more of the pages before I purchase the PDF file, any way of doing that.
ReplyDeleteHi Suzie! I do have quite a few of the pages in this post to view: http://www.sunshineandspoons.com/2017/01/special-needs-and-chronic-illness.html Are there any specific pages you'd like to see?
Deletehi i was diagnosed with EDS last year and pots and it has been crazy trying to get the help i need
ReplyDelete