10 Things Guaranteed to Cure Whatever Ails You

This post contains referral links which means that if you purchase from one of my links, I will receive a small percentage of the sale.  Don't worry, this won't cost you any extra!

As someone with Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, asthma, acid reflux disease, eczema, etc, I've heard it all.  On top of that, all four of my kids have Ehlers Danlos Syndrome as well, and three of them also have asthma and eczema.  My youngest son, Davy, had to have a feeding tube until he was 18 months old due to the severity of his issues.

With all that, there's no shortage of unsolicited advice and cures.

"You only have your disease because you've 'claimed' it."

"You'd feel better if you would exercise more and eat better."

"Your *insert condition here* could be cured if you tried this supplement."

"Your EDS was caused by vaccinations."

Thanks to all the helpful advice I've received, I was able to put together a list of things that will cure any problem you have.  You're welcome.

Bodysuit Solutions for Special Needs Kids

This post contains referral links which means that if you purchase from one of my links, I will receive a small percentage of the sale.  Don't worry, this won't cost you any extra!
I was also compensated for this post, but all opinions stated are mine. 

Davy wore an actual shirt instead of a onesie for the first time ever when he was 18 months old.  Before that, he only wore onesies to protect his G Tube on his tummy.  They kept his Mini One button covered and protected from pull-outs.

We had planned to leave the G Tube in until after the next cold and flu season as Davy generally regressed quite a bit with his oral eating when he got sick.  However, due to recurring infections, Davy's G Tube was removed earlier than planned.  Thankfully, he continued eating 100% by mouth and didn't regress too much during cold and flu season, as we had feared he might.

Special Needs and Chronic Illness Medical Binder Printable

When Davy was in the thick of his medical complexities, I put together a binder full of information and notes that I took with me to every appointment.  I used the binder to track Davy's symptoms, log his meds and hospitalizations, record questions for upcoming appointments, and more.  It was pretty basic...loose notebook paper shoved in plastic sheet protectors and held together in a 3 ring binder.  Nothing fancy, but it helped me stay organized and on top of Davy's care needs, especially when we switched health care providers.

Then, last year, Davy along with two of his siblings and I, were all diagnosed with Ehlers Danlos Syndrome. 

Meet AJ - Epidermolysis Bullosa

October is Epidermolysis Bullosa Awareness month!  In honor of that, I interviewed Barb, whose 8 year old son, AJ, was born with the disease.

What condition does your child have?
Recessive Dystrophic Epidermolysis Bullosa

How does it affect your child? How does it affect daily life?
It's a genetic condition that impacts the production of collagen. It causes his skin and internal membranes to be very fragile. He develops blisters and wounds very easily. Each day he soaks in a tub, and his bandages are removed. We lance the blisters, treat the open wounds and wrap with specialty bandages. A lot of time is spent treating his wounds. He is unable to eat much due to GI issues related to EB and is fed through a GJ tube. He vomits multiple times a day and this past year has been very hard on his eyes as well. He often has blisters in them. He is in a lot of pain and uses a power wheelchair to reduce damage to his body.