Showing posts with label Spina Bifida. Show all posts
Showing posts with label Spina Bifida. Show all posts

Monday, November 27, 2017

20+ Places to Buy Adaptive Clothing and Accessories for Special Needs

This post contains referral links which means that if you purchase from one of my links, I will receive a small percentage of the sale.  Don't worry, this won't cost you any extra!

For parents who have kids with special needs or a disability, it can be hard to find clothes that work well and are easy to wear.


This list of places that sell adaptive clothing and accessories covers just about everything from G Tubes to wheelchairs to sensory needs.   

Wednesday, November 1, 2017

Bodysuit Solutions for Special Needs Kids


This post contains referral links which means that if you purchase from one of my links, I will receive a small percentage of the sale.  Don't worry, this won't cost you any extra!
I was also compensated for this post, but all opinions stated are mine. 

Davy wore an actual shirt instead of a onesie for the first time ever when he was 18 months old.  Before that, he only wore onesies to protect his G Tube on his tummy.  They kept his Mini One button covered and protected from pull-outs.

Bodysuit Solutions for Special Needs Kids

We had planned to leave the G Tube in until after the next cold and flu season as Davy generally regressed quite a bit with his oral eating when he got sick.  However, due to recurring infections, Davy's G Tube was removed earlier than planned.  Thankfully, he continued eating 100% by mouth and didn't regress too much during cold and flu season, as we had feared he might.

Thursday, January 12, 2017

Special Needs and Chronic Illness Medical Binder Printable


When Davy was in the thick of his medical complexities, I put together a binder full of information and notes that I took with me to every appointment.  I used the binder to track Davy's symptoms, log his meds and hospitalizations, record questions for upcoming appointments, and more.  It was pretty basic...loose notebook paper shoved in plastic sheet protectors and held together in a 3 ring binder.  Nothing fancy, but it helped me stay organized and on top of Davy's care needs, especially when we switched health care providers.

Special Needs and Chronic Illness Medical Binder Printable

Then, last year, Davy along with two of his siblings and I, were all diagnosed with Ehlers Danlos Syndrome. 

Monday, October 24, 2016

Meet Simeon - Spina Bifida Awareness

In honor of October being Spina Bifida Awareness month, I interviewed Mary Evelyn from What Do You Do, Dear? about her son, Simeon who was born with Spina Bifida.

I've followed Mary Evelyn's blog for several years now and love her honest, humorous style of writing.  She doesn't candy coat what it's like to have a child with special needs but somehow manages to bring out the beauty of it as well. 

In addition to raising her two awesome and completely adorable kids, Simeon and Franny, Mary Evelyn is a school librarian which sealed the deal as far as me being a devoted follower of her blog.  Librarians unite!  Sorry, I'm just keeping it non-fiction over here.

Without further ado (and my sincere apologies for rambling), here's Mary Evelyn!   


What condition does your child have?
  • Myelomeningocele, commonly known as Spina Bifida.