The Ultimate List of Ehlers Danlos Resources

In case you haven't noticed, I'm kind of passionate about raising awareness and understanding for the Ehlers Danlos Syndromes (which I've been told is now the right way to say it.)  I have this passion for five reasons.

Reasons 1-4: My kids.  Katie (10), Nano (8), Anna (6), and Davy (4) all have Hypermobile Ehlers Danlos Syndrome or hEDS which they inherited from me.  I want them to grow up in a world that I didn't grow up in...one that acknowledges and understands their condition and where doctors know what it is and how to treat it.

Reason 5: Everyone else with EDS.  Most people with EDS spent the majority of their lives being told it's all in their heads when that couldn't be further from the truth.  We're already at high risk for depression and suicide due to living in chronic debilitating pain and all of the other EDS symptoms.  Not being believed or understood makes everything so much worse.

So, with that in mind, I put together a list of EDS resources, printables, freebies, awareness products, etc.

Ehlers Danlos Syndrome Awareness Bundle Giveaway!

This post contains referral links which means that if you purchase from one of my links, I will receive a small percentage of the sale.  

If you have Ehlers Danlos Syndrome, you know how important it is to raise awareness for the disorder. Most people you encounter have never even heard of it and many doctors don't know much about EDS or have incorrect information on it.

If you're looking for ways to help raise awareness, I have an entire post devoted to that here.

You want to hear something really awesome though?

I'm co-hosting a giveaway for an Ehlers Danlos Syndrome awareness bundle with five other awesome bloggers!!  My co-hosts are Sarah from My Stripy Life, Brittany from A Southern Celiac, Sara from A Zebra Writes, Jenni from 1visibl3Girl, and Mary from The Headache Heroine.

My Newsletter and 5 FREE Printables!

Who loves printables? *raises hand*  Who loves getting stuff for free? *raises hand and waves frantically in the air*

Everything I've read about blogging in the last couple of months has emphasized the importance of having an email newsletter so I finally bit the bullet and designed one :)

It will be sent out once a week and include a recap of the last week's blog posts, a personal note from me, occasional freebies and special deals that will only be available to my subscribers, and more!

Everyone who subscribes will receive these 5 free printables in PDF form.