Showing posts with label charcot marie tooth. Show all posts
Showing posts with label charcot marie tooth. Show all posts

Tuesday, January 16, 2018

25+ Products That Make Life with Chronic Illness Easier

This post contains referral/affiliate links which means that if you purchase from one of my links, I will receive a small percentage of the sale.  Don't worry, this won't cost you any extra!

Having a chronic illness definitely makes life harder.  I'm assuming that, like me, you don't have the resources to hire a full-time nanny, chef, housekeeper, personal assistant, etc. either.  So, until I win the lottery (which will probably be tricky to do as I don't even play the lottery), I will have to go on finding products that work for me to make my life with a chronic illness easier.  

25+ Products That Make Life with Chronic Illness Easier

Here's what I've come up with so far.  Some are things I already use, some are on my wishlist (my birthday's in May if anyone wants to just go ahead and buy me everything on my wishlist! Hey, doesn't hurt to try, right?!?) and some are highly recommended by other spoonies.  Feel free to add your own suggestions in the comment section!

Tuesday, November 7, 2017

10 Things Guaranteed to Cure Whatever Ails You

This post contains referral links which means that if you purchase from one of my links, I will receive a small percentage of the sale.  Don't worry, this won't cost you any extra!

As someone with Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, asthma, acid reflux disease, eczema, etc, I've heard it all.  On top of that, all four of my kids have Ehlers Danlos Syndrome as well, and three of them also have asthma and eczema.  My youngest son, Davy, had to have a feeding tube until he was 18 months old due to the severity of his issues.

10 Things Guaranteed to Cure Whatever Ails You

With all that, there's no shortage of unsolicited advice and cures.

"You only have your disease because you've 'claimed' it."

"You'd feel better if you would exercise more and eat better."

"Your *insert condition here* could be cured if you tried this supplement."

"Your EDS was caused by vaccinations."

Thanks to all the helpful advice I've received, I was able to put together a list of things that will cure any problem you have.  You're welcome.

Tuesday, September 19, 2017

Meet Sarah: Charcot-Marie-Tooth Disease Awareness

Charcot-Marie-Tooth...sounds like a fancy dentist, right?

Actually, it's a neurological disorder that was named after the three doctors who first identified it.  It affects approximately 1 in 2,500 people.  Some of the symptoms include foot deformities, muscle weakness and atrophy, loss of sensation, and more.

September is Charcot-Marie-Tooth or CMT awareness month.  Joining me today is Sarah Wells from My Stripy Life to talk about her journey with CMT.

Meet Sarah: Charcot-Marie-Tooth Disease Awareness

Hannah from Sunshine and Spoons: What condition do you have?

Sarah from My Stripy Life: I have lots of conditions, labels that have been applied to my list of symptoms over the years, my most recent being Ehlers-Danlos syndrome (hEDS) and the associated co-morbidities. But the one I'm going to tell you a little more about today is my first diagnosis, Charcot Marie Tooth Disease (CMT). It's a peripheral neuropathy affecting the sensory and motor nerves to my arms and legs. I like to think that my bodies nerves are like a system of electrical wires and because of CMT the wiring to my arms and legs is wonky.

💙

Hannah: How does it affect you? How does it affect your family's daily life?