Showing posts with label feeding tube. Show all posts
Showing posts with label feeding tube. Show all posts

Monday, November 27, 2017

20+ Places to Buy Adaptive Clothing and Accessories for Special Needs

This post contains referral links which means that if you purchase from one of my links, I will receive a small percentage of the sale.  Don't worry, this won't cost you any extra!

For parents who have kids with special needs or a disability, it can be hard to find clothes that work well and are easy to wear.


This list of places that sell adaptive clothing and accessories covers just about everything from G Tubes to wheelchairs to sensory needs.   

Monday, November 13, 2017

30+ Books for Kids with Special Needs Siblings: The Ultimate List

This post contains referral links which means that if you purchase from one of my links, I will receive a small percentage of the sale.  Don't worry, this won't cost you any extra!

When my youngest son Davy was born, my three older kids were 6, 4 and 17 months old.  The next year or so was very hard on my whole family as Davy spent countless hours at doctors' appointment, was hospitalized five times and, and required one-on-one care during most of his waking hours.  The guilt of not being able to care for all my kids' needs was crushing and made even worse when people would "helpfully" point out that I had three older kids who needed me too.  I knew that having a medically complex, special needs sibling was hard on my kids and I didn't want them to resent him or feel left out.

When Davy was around six months old, I found a book about kids with G Tubes on Amazon and got it to read to the older kids.  It helped them see that their brother's button wasn't scary and other kids had them too.  That got me thinking of how helpful books could be for kids who have siblings with special needs.

30+ Books for Kids with Special Needs Siblings: The Ultimate List

Keep reading for a list of over 30 books for kids with special needs siblings.

Tuesday, November 7, 2017

10 Things Guaranteed to Cure Whatever Ails You

This post contains referral links which means that if you purchase from one of my links, I will receive a small percentage of the sale.  Don't worry, this won't cost you any extra!

As someone with Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, asthma, acid reflux disease, eczema, etc, I've heard it all.  On top of that, all four of my kids have Ehlers Danlos Syndrome as well, and three of them also have asthma and eczema.  My youngest son, Davy, had to have a feeding tube until he was 18 months old due to the severity of his issues.

10 Things Guaranteed to Cure Whatever Ails You

With all that, there's no shortage of unsolicited advice and cures.

"You only have your disease because you've 'claimed' it."

"You'd feel better if you would exercise more and eat better."

"Your *insert condition here* could be cured if you tried this supplement."

"Your EDS was caused by vaccinations."

Thanks to all the helpful advice I've received, I was able to put together a list of things that will cure any problem you have.  You're welcome.

Wednesday, November 1, 2017

Bodysuit Solutions for Special Needs Kids


This post contains referral links which means that if you purchase from one of my links, I will receive a small percentage of the sale.  Don't worry, this won't cost you any extra!
I was also compensated for this post, but all opinions stated are mine. 

Davy wore an actual shirt instead of a onesie for the first time ever when he was 18 months old.  Before that, he only wore onesies to protect his G Tube on his tummy.  They kept his Mini One button covered and protected from pull-outs.

Bodysuit Solutions for Special Needs Kids

We had planned to leave the G Tube in until after the next cold and flu season as Davy generally regressed quite a bit with his oral eating when he got sick.  However, due to recurring infections, Davy's G Tube was removed earlier than planned.  Thankfully, he continued eating 100% by mouth and didn't regress too much during cold and flu season, as we had feared he might.

Thursday, October 26, 2017

50+ Books for Special Needs Kids: The Ultimate List

This post contains referral links which means that if you purchase from one of my links, I will receive a small percentage of the sale.  Don't worry, this won't cost you any extra!

If your child has special needs of any kind, reading them a book about another child with similar issues can make them feel less alone.  

When I got my kids a copy of "Special Like Me" which is a book about a boy with Ehlers Danlos Syndrome just like they have, they were pretty excited.  I even took it to the school and read it to each of my two oldest kids' classes.

For children with special needs of any kind, reading them a book about another child with similar issues can make them feel less alone.  

50+ Books for Special Needs Kids: The Ultimate List

Books that focus on special needs of any kind are not just a great idea for the kids who have them, but for their peers, family, and anyone else who could benefit from learning more about the condition (hint: that would be everyone).

With that in mind, I spent several days researching and compiling this list of children's books about various special needs and disabilities.  I hope you find a book that works for your family!   

Monday, October 16, 2017

Just Like Me: Toys for Kids with Special Needs

This post contains referral links which means that if you purchase from one of my links, I will receive a small percentage of the sale.  Don't worry, this won't cost you any extra!

Kids love it when their toys look like them.  From hair and eye color, to any special needs that they might have, it helps them feel accepted.  They can also help kids feel less afraid of their differences or medical conditions.

My son Davy was only two months old when he had surgery to get his G Tube.  The day before his surgery, a nurse came into his hospital room with a stuffed bunny that had a G Tube just like the one Davy would be getting.  I practiced hooking the extension tube up on the bunny before and after Davy got his feeding tube which was much less stressful than having to practice on my screaming baby.  He got his G Tube out when he was 18 months old, but the bunny still sits on top of his dresser.  I plan to add it to his memory box when he gets older.

Just Like Me: Toys for Kids with Special Needs

Toys that are adapted or created to have special needs or disabilities shouldn't just be for the kids who have them though.  What greater way to teach your child that it's okay to be different, have a feeding tube, or wear leg braces than for them to play with a toy like that?

Tuesday, February 14, 2017

A Few of My Favorite (Tubie) Things!

This post contains referral links which means that if you purchase from one of my links, I will receive a small percentage of the sale.  

For 16 months of his life, my son Davy had a hole in his tummy.

He got it when he was two months old and was unable to eat enough to grow.  His G Tube was a little button that was inserted into the surgically placed hole or stoma in his precious little tummy.  Eventually, he learned how to eat and when he was 18 months old, we were able to remove his G Tube, leaving a little pucker on his stomach that resembles a second bellybutton.

A few of my favorite tubie things + a giveaway!

During Davy's time as a "tubie," I compiled a list of things that I found especially useful or just really cool and am excited to share them with you.  Please keep in mind that everyone is different and what works for one person, may not work for the next.

Tuesday, January 31, 2017

Davy's Tube Feeding Story

I used to think that only kids who were terminally ill, disabled, or premature had to have feeding tubes.  I never in a million years thought I would have a child who would need a to be tube fed.

I was so wrong.

Davy's Tube Feeding Story